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Medical explanations aside as I deal with those in What is
a Cleft Lip and What is a Cleft Palate pages of this site,
this page is dedicated to why this might have happened to
you and your family.
To date, there has been
no one single cause found to predetermine clefting in an
embryo. So...
Don't take the blame!
It's pretty
classic that people will ask how it happened. There may even be one or
two misguided souls who ask you what you ate / drank / smoked / stood next
to / thought about / breathed in / worked with...etc.. etc.. during your first
trimester - like it is your fault. Please, please, please... don't take that on.
One 'well meaning'
relative in my husband's family commented within ear shot
that it had to be on my 'side of the family' as everyone
on theirs was 'normal'. I pray that you are
never witness to comments like this but if you are, try
not to let it upset you.
Ask to speak with a
Genetic Counsellor at the hospital is the
best bit of advice I can give you on this matter. They will look back into
your family history and see if there is a likely cause.
It may seem like the worst
thing in the world right about now, but if any of the cleft kids I've met
over the past few years are anything to gauge it on, it's not always that
bad.
It's hard to stop but,
really, worrying for the baby is moot at this tender age,
unless there are other factors involved in the whole
situation and then you are outside of my realm of
understanding and I won't even pretend to appreciate what
you're going through at this stage.
My second born child was planned. I
exercised, I ate the right food, I had good folic intake, I did
everything by the book and under the doctor's keen eye as I had pre-eclamsia
and was hospitalised from 34 weeks with my first pregnancy.
As
gorgeous as our first born was at birth (and still is) he came out with
undiagnosed health problems that stopped him from breathing after he had
been home a few days. So, having almost lost him 7 times in his first four
months of life, never spending a night in the same bed as my husband as we
took it in turns to sleep in with the baby, having to give up breast-feeding
because the two of us spent too many nights in the hospital and my milk
dried up out of stress, having to strap the tiny soul into his bed each
night so he didn't roll off him monitor that alarmed whenever he stopped
breathing (draws a deep breath) - I just wanted the second child to
be the 'easy baby'.
When Tim was born with the bilateral cleft
lip, no hard palate and a split soft palate I kind of gave up the notion
that he was going to be my 'easy baby'. I vowed he was to be my last,
however! I had two perfect boys - why tempt fate?
Of course I worried at
times (yeah, I know I told you not to, but I'm the
voice of experience here) and I even felt
anger at stares, and annoyance at ignorance, but it's life
and most misguided comments or reactions will be just that
- misguided. Best bit of advice I can give to you is
to not over-react. I know I have sometimes, but,
again with the voice of experience thing...
When Tim was still very
little I read a personal story where the girl said that
her mother was so over-protective of her that it drove her
nuts as she grew older. Her mother acted like it was
something that happened personally to her, tackling kids
in the schoolyard for playing roughly with the girl (when
all it really was was general kid's play). In the
end the girl felt some resentment towards her for that.
That article made me stop and think. It is theirs!

There most definitely
came a time in my son's life where the condition became
wholly his, and while it was mine to worry over in the
first few years it then became his to live with for the
rest of his life.
I'm just
here as a support person - to walk along side of him
throughout his life and give whatever support he needs of
me.
As for what might happen in the future?
You need to remember that kids are kids and it doesn't matter a bean if your
child has a cleft scar, a speech problem, wears glasses, walks with a limp,
has blonde hair, freckles or green eyes... kids will find something to tease
others about. Don't focus on the cleft or you may miss the great
things too!
I bet that last thought has brightened your
day no end :)
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