Cleft Lip and Palate - A Parent's Guide (book)

This booklet was produced for several years by the NSW branch of CleftPALS however due to changes in medical procedures the book ceased publication.  The link above is to the electronic version of this booklet, updated regularly.

 

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Visit this site to see how the human face actually forms in embryo state.

http://embryology.med.unsw.edu.au/Movies/larsen/face.mov

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For information about Pierre Robin Sequence:

http://www.ddms.com.au/medical-conditions/craniofacial-conditions/pierre-robin-syndrome/

http://www.agsa-geneticsupport.org.au/node/79

 

Need support?

There is no SA based support group but in Australia you can contact Mick and Jacinta Cannon 03 8751 1174 - part of CleftPALS Vic.

http://www.pierrerobin.org.au/MEMBERSHIP.php

or try online groups such as:

http://www.pierrerobin.org/

http://www.faces-cranio.org/Disord/PierreRobin.htm

 

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For information about the Medicare Cleft Lip and Palate Scheme:

http://www.medicareaustralia.gov.au/public/services/cleft-lip.jsp

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Information sheets issued by CleftPALS Victoria:

 

Some Facts

[Word Doc (76 kb) / pdf version (79 kb)]

Cleft Overview

[Word Doc (43 kb) / pdf version (141 kb)]

Introduction to Parent Info

[Word Doc (25 kb) / pdf version (125 kb)]

Specialist Glossary

[Word Doc (25 kb) / pdf version (125 kb)

Feeding Your Baby with a Cleft

[Word Doc (28 kb) / pdf version (114 kb)]

Breastfeeding your Baby with a Cleft

[Word Doc (40 kb) / pdf version (153 kb)]

Ultrasound Detection Infokit

[Word Doc (27 kb) / pdf version (127 kb)]

Ultrasound Detection Article

[Word Doc (229 kb) / pdf version (262 kb)]

Financial Benefits Available to Cleft Patients

[Word Doc (25 kb) / pdf version (125 kb)]

Love

[Word Doc (141 kb) / pdf version (137 kb)]

Why Isn't my Child Perfect?

[Word Doc (26 kb) / pdf version (128 kb)]