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CleftPALS SA now has it's own DISCUSSION BOARD.
Go here to join up:
http://cleftpalssa.ning.com/
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Many thanks
to the incredibly hard working NSW Committee for an amazing
and well planned national AGM and Speaker's Day on 3rd and
4th July 09.
You've set a high bar for SA next year! Dagnammit!
For
my write up about the weekend, visit my pages here:
Sydney AGM
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Hello Friend and welcome to 2009...
You have
obviously come to this site in search of information on the
most common birth defect in Australia;
Cleft lip and/or Cleft
palate.
Perhaps you are a parent who has recently had your unborn
baby diagnosed with this condition, or your baby has been
born with a cleft lip and/or palate, or you may even be a
family member looking for information and some advice.
Whatever brought you to this page, let me say
Welcome.
Through this
site I hope you come to a better understanding of what a
Cleft Lip and/or Cleft Palate is, how it might affect a
baby/child and where you can go to for more information,
advice and - maybe most importantly - support.
Please
remember as you wander through my site that
I'm
not a Medical Doctor nor am I an expert.
I'm simply a mother who has lived with a gorgeous
cleft-affected child for the past thirteen years; stumbling,
sometimes a little blindly, through the many appointments
and clinics that it all involves without a support group to
help me.
Without a
support group in Adelaide when I needed one, I contacted the
national support group, CleftPALS, and asked to join their
team.
If you are a
new parent or a parent to be, let me say
Congratulations!
You have embarked on the most glorious but daunting ride of
your life. Your child will endure a lot in their life,
and you will too alongside them, but you are going to love
the wide smile, and you are not going to be alone.
I don't know
it all, I won't know it all, but I will listen.
This site is
still growing so please continue to check this site
periodically.
Regards
Leanne
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