Cleft_SA

 
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A South Australian website

 What is a Cleft Lip?

 What is a Cleft Palate?

How often are babies born with Clefts?

Did I do something wrong?

What do I tell others?

How do I pay for treatment?

What happens now?

 

 

 What is a Hare Lip?

 What about feeding?

 What about speech?

 What about ears?

 Why does it happen?

 What's Genetic Counselling?

 What happens now?

 What about the future?

Sincere THANKS to Mr Brant Desmond and the fantastic team at SOHO Technology Solutions Pty Ltd for their generosity in providing this site and domain free of charge to this charity.

http://www.bizwebspace.com.au

 

Please note:

This is not a medical site. 

Information provided on these pages does not take the place of information provided by your specialist team. 

The information provided on these pages is for advice only. 

Changes and new research  may alter the evidence on these pages prior to updating.

Always consult with your Specialist Team for the latest information in the treatment of Cleft Lip and/or Cleft Palate.

Welcome

You have obviously come to this site in search of information on the most common birth defect in Australia; Cleft lip and/or Cleft palate. Perhaps you are a parent who has recently had your unborn baby diagnosed with this condition, or your baby has been born with a cleft lip and/or palate, or you may even be a family member looking for information and some advice. Whatever brought you to this page, let me say Welcome.

Through this site I hope you come to a better understanding of what a Cleft Lip and/or Cleft Palate is, how it might affect a baby/child and where you can go to for more information, advice and - maybe most importantly - support.

Please remember as you wander through my site that I'm not a Medical Doctor nor am I an expert. I'm simply a mother who has lived with a gorgeous cleft-affected child for the past eleven years; stumbling, sometimes a little blindly, through the many appointments and clinics that it all involves without a support group to help me. 

Without a support group in Adelaide when I needed one, I contacted the national support group, CleftPALS, and asked to join their team. 

If you are a new parent or a parent to be, let me say Congratulations!  You have embarked on the most glorious but daunting ride of your life.  Your child will endure a lot in their life, and you will too alongside them, but you are going to love the wide smile, and you are not going to be alone.

I don't know it all, I won't know it all, but I will listen.

This site is still new so please continue to check this site as it grows.

Regards

Leanne

 

 

http://www.indiana.edu/~anat550/hnanim/face/face.swf

Raise Awareness of the Cleft Condition

Clancy Has A Cleft
raises awareness of the cleft condition, and helps minimise the negative impact it can have on our children.  This book, aimed at young children, is designed to help with the transition to school as well. 

 Do you want a copy for your home, family or child's school?

To find out more or to purchase your own copy for $4.00 plus postage
email me

NATIONAL CLEFT AWARENESS WEEK

November 8 - 14  2008

Go Casual For Clefts at work or school >>
find out more!

Did you know that if every time a visitor read these pages and donated just one single dollar for the effort, CleftPALS SA would have

$Hit Counter

now towards covering its costs of raising awareness.

So far- I've had $0 donations.   Donations $2 and greater are Tax Deductible.  Won't you help?

 

'08 Updates:

 

June 08

  • I've just updated the GOKAV page

  • I've created and uploaded the Photo Page for the GOKAV campaign 2007. Go here

 

April 18- 

  • I've uploaded the What about Ears? page.

  • I've updated the Members page.

 

 

March 2008:  In September 2002 I wrote a Dr Suess style poem about a conversation between a young child and his mother.  This poem was intended for publication however I haven't ever pursued that, and so have uploaded it here for you to read - and enjoy, I hope.  

"Mummy why is my

face diff'ent?"

 

 

February 2008:   The "Give Our Kids a Voice" Speech Therapy campaign is going strong.  There is still time to add your voice to the throng though! Simply email me and I will post out a Petition to take to your next Cleft Clinic or even just down your local street, church, mothers' meeting.. etc.. to get names added to the sheet.  The more support - the better the outcome!  Please help our cause.  

 

 

Hey You!

Come make some noise..

We need to tell others to Give Kids a Voice...

Hey You!

Come lend a hand...

Then we can help others across  the land..

 

Give Kids a Voice

Give Kids a Voice

Come lend a Hand

Come make some Noise

 

Give Kids a Voice

Give Kids a Voice

Come lend a hand and

Give Kids a Voice!

 

YAY!

 

 
     
Copyright [2007] [Cleft_SA]. All rights reserved.